Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.

Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...

Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

A 70-year-old man undergoing a leg amputation was diagnosed with a rare combination of acquired hemophilia A and Factor XII ...

Recognizing the link between bleeding disorders and Ehlers-Danlos syndrome is key to improving care, says columnist.

I’m a hospice chaplain, and one day I was at the nurses’ station, completing my notes from a patient visit, when the fire alarm sounded. Startled, I turned to the nurse, who said the alarm had been ...

What is giroctocogene fitelparvovec for hemophilia? Giroctocogene fitelparvovec, formerly known as SB-525 or PF-07055480, is a gene therapy being developed to reduce the risk of bleeding episodes in ...

What is Hemgenix for hemophilia? Hemgenix (etranacogene dezaparvovec-drlb) is a gene therapy approved to reduce the risk of bleeds in certain adults with hemophilia B. It is administered as a one-time ...