When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...

After undergoing an emergency double-lung transplant, I was heartbroken to learn that getting pregnant would no longer be a viable option for me. That moment marked the beginning of our ongoing ...

The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I’m now learning to heal from.

In December 2019, I started taking Trikafta. I had always taken advantage of new cystic fibrosis medicines and therapies that became available but always hoped for something a little more than ...

BETHESDA, Md. (September, 24, 2025) — Today, the Cystic Fibrosis Foundation announced that Adela Skenderasi, CFA, will join the organization as its next Chief Investment Officer (CIO) on October 13, ...

Caring for anyone with a long-term disease — especially if that person is your child — is stressful. Parents of children with cystic fibrosis are more likely to experience anxiety, depression, or both ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...