When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...

The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I’m now learning to heal from.

In December 2019, I started taking Trikafta. I had always taken advantage of new cystic fibrosis medicines and therapies that became available but always hoped for something a little more than ...

After undergoing an emergency double-lung transplant, I was heartbroken to learn that getting pregnant would no longer be a viable option for me. That moment marked the beginning of our ongoing ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Prime Medicine’s prime editing technology has the potential to bring genetic therapies to all people with cystic fibrosis, ultimately paving the way to a cure. BETHESDA, Md. — Today, the Cystic ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

Dr. Steven Rowe will support mission to cure cystic fibrosis by leading the Foundation’s research strategy, focusing on genetic therapies BETHESDA, Md. -- Today, the Cystic Fibrosis Foundation ...

New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease BETHESDA, Md. — The Cystic ...