Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is …
Heds and mental health: what's the connection? - Ehlers ... - Inspire
Feb 20, 2025 · However, based on the updated diagnostic criteria for hEDS, it seems like an Autism diagnosis wouldn’t account for the physical aspects of hEDS—things like …
hEDS without stretchy skin? - Ehlers-Danlos Syndromes - Inspire
Jan 24, 2022 · Not everyone with hEDS has skin hyperextensibility. Skin manifestations are more common in classical EDS (cEDS). Usually if people with hEDS have skin hyperextensibility it is …
I found a hypermobile EDS doctor in Oklahoma City
Mar 5, 2024 · I had trouble locating a doctor in the Oklahoma City area who was knowledgeable with connective tissue disorders, hypermobility, and hEDS until recently. The Venturis Clinic is …
Doctors in Massachusetts? - Ehlers-Danlos Syndromes - Inspire
Jul 16, 2015 · I know there are a few doctors out in Boston at MassGeneral and Tufts that diagnose EDS-III, but are there any others? I was told I have Joint
Radiation and hEDS - Ehlers-Danlos Syndromes - Inspire
Mar 8, 2025 · Does anyone with hEDS have any experience with radiation for breast cancer and side effects? Creams that helped? Any other suggestions for getting through side effects? …
hEDS and electrolytes - Ehlers-Danlos Syndromes - Inspire
Nov 6, 2024 · I’m trying to understand the relationship between hEDS and electrolyte/hydration balance. What do you experience when electrolytes are low, and why
Can you suffer from two types of Eds? - Ehlers-Danlos Syndromes
Nov 23, 2023 · In terms of hEDS + another type of EDS/another connective tissue disorder, this is not possible with the current criteria, because hEDS is a diagnosis of exclusion. However, …
Does anyone else have Eye problems with HEDS - Inspire
Apr 8, 2025 · I would caution anyone with hEDS to let doctors know how likely you are to have failures from surgery because of fragile tissues. That being said, I’m enjoying watching birds …
Holding a pen/pencil - Ehlers-Danlos Syndromes - Inspire
Jun 9, 2019 · How does everyone hold their pen or pencil? In 2nd grade I had this teacher who literally harassed me for the entire year about the way I hold my